Today's Boston Globe has the article about my fight with my insurance company to pay for my hospice care: http://www.boston.com/news/local/massachusetts/articles/2009/05/22/advocate_for_others_fights_to_die_at_home/. There's also a link to a brief video in which I explain my situation. I'm sure that this article will generate a faster response from United Health Care than my snail-mail appeal, which I'm sure is just now entering their system.
The Globe writer, Kay Lazar, did an excellent job, and got everything right. There's also a great quote from the administrator at my doctor's office, Nancy Boucher, who says, "I have never had an insurance company call me and say a patient has exhausted her hospice [benefit]. I was devastated when they called me about her case. You mean this woman can't have hospice because she didn't die fast enough?"
Another piece of good news is that Julie found another person who wants to work as one of my PCAs, and brought her over yesterday evening for an interview. Her name is Laurel and she wants a minimum of ten hours a week. She's the mother of four kids (one with special needs), and I think she, Marty, and I probably know a lot of people in common (when I mentioned to her that he worked with groups promoting middle east peace). Since Ann has fewer hours available this semester (originally she thought she'd have more), I really need at least one more person. A day like yesterday, when I was exhausted from any exertion and Marty was out (he had two doctors' appointments, and then gave a talk in the evening) showed me that I really shouldn't be alone.
It's pretty early in the morning, but I feel stronger now than I have the past few mornings, so I'm hoping for a good day.