Monday, October 19, 2009

Tired, bored, frustrated

Yesterday I didn't have the energy to get out of bed. I watched football all day--first the Giants losing their first game of the season, to New Orleans, and then the Patriots blowing out Tennessee--I think the final score of that one was 51-0. When the Pats game came on I was surprised to see snow on the field and asked Marty if it was snowing here--he said it wasn't but about fifteen minutes later the snow started here--first of the season. There wasn't much here but there was quite a bit there.

Today at least I had a little more energy. I have been in the living room most of the day. Tim came for his regular Monday morning visit, then Ann arrived and the three of us talked for awhile about psychiatric rehabilitation and the changes that people are capable of making when they have the right supports, as compared with low expectation programs that infantalize people so that they never become independent.

Nancie arrived about two and I told her I was feeling strong enough to take a shower, which always helps my mood. It feels so good to be clean all over! I didn't sleep much last night because I have been feeling so distraught, but I'm tired now and hoping I will be able to sleep tonight.

It looks like we will be going to Omaha for the Alternatives conference--the guy who's been working on it in Philadelphia called me with flight information, and I should be getting details by tomorrow. I'll need to talk to Lauren about getting hospice coverage for while I'm there, as well as oxygen--I will give her a call tomorrow. I hope Medicare is flexible and will allow me to travel.

It will be good to have a chance to see a lot of people I haven't seen in awhile, and this should make up for not being able to go last year when it was in Buffalo and we were going to drive there. So that's all something to look forward to. There isn't much that's good these days.


  1. I am SO glad you will be going to the Alternatives conference in Ómaha! Having something to look forward to can be the best thing in life!
    Love, Hopey, in Iceland

  2. dear judi love you and miss you.thanks all your help and support and understanding over the years. hope you feel better and hope you be ok. i ok . enjoy narpa conference phoenix arizonia this year and enjoy vist my parents hanover nh about once month and not been able vist them awhile and hope can vist them soon at thier apt retirement commuinty kendall in new hampshire .all my love judi marj