tag:blogger.com,1999:blog-3242425181922845809.post5699566283591951912..comments2024-03-26T03:32:09.041-04:00Comments on Life as a Hospice Patient: Responding to comments by "Anonymous"Judihttp://www.blogger.com/profile/01890827938039607129noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-3242425181922845809.post-14131682912039245952023-09-15T14:06:58.566-04:002023-09-15T14:06:58.566-04:00https://saglamproxy.com
metin2 proxy
proxy satın a...<a href="https://saglamproxy.com/" rel="nofollow">https://saglamproxy.com</a><br /><a href="https://saglamproxy.com/metin-2-proxy-satin-al/" title="metin2 proxy" rel="nofollow">metin2 proxy</a><br /><a href="https://saglamproxy.com/ipv4-residential-proxy-satin-al/" title="proxy satın al" rel="nofollow">proxy satın al</a><br /><a href="https://saglamproxy.com/knight-online-proxy-satin-al/" title="knight online proxy" rel="nofollow">knight online proxy</a><br /><a href="https://saglamproxy.com/4g-mobil-proxy-satin-al/" title="mobil proxy satın al" rel="nofollow">mobil proxy satın al</a><br />S06TNTyağmurnoreply@blogger.comtag:blogger.com,1999:blog-3242425181922845809.post-2069157605993094002010-01-05T15:24:57.114-05:002010-01-05T15:24:57.114-05:00Hi Judi, I stumbled on this blog by accident (if ...Hi Judi, I stumbled on this blog by accident (if there is such a thing) and just wanted to tell you what a huge difference you're making in the world. Thought provoking in areas where most people just don't want to go. Best wishes to you all!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3242425181922845809.post-65372353432236765972010-01-02T13:13:38.680-05:002010-01-02T13:13:38.680-05:00Thanks, Anon, for keeping this dialogue going. I ...Thanks, Anon, for keeping this dialogue going. I think it's very important in this topic not to polarize into "keeping the persoh at home" equals "good" vs. "put the person in an institution" equals "bad," and intead keep the focus on how few social supports exist to help people to keep a family member at home. I applaud you for taking care of your grandmother and pointing out the advantages of it (not just the drawbacks that I think most people would point to), but it's important not to make anyone feel guilty because they may want to keep a family at home but lack the social supports, or because they choose institutional care. I'd like to see broader dialogue develop on this question, and I think will suggest it on the main body of the blog.Judihttps://www.blogger.com/profile/01890827938039607129noreply@blogger.comtag:blogger.com,1999:blog-3242425181922845809.post-40294663504735809002009-12-30T13:47:47.627-05:002009-12-30T13:47:47.627-05:00You said:
"Hospice is, I think, a way of tryi...You said:<br />"Hospice is, I think, a way of trying to step outside the mainstream and help people to think about death and dying in a different way. Too many people think that to talk of dying is "giving up," that it means a lack of caring, and that anything less than providing every possible treatment constitutes neglect. "<br /><br />I think that you are correct - we definitely need a paradigm shift in how we approach death and dying. It reminds me of the old adage: 'just because we can does not mean we should." Sure, we CAN keep treating people with end of life illnesses - but with no hope of a cure or any meaningful life extension - such treatments can be tantamount to torture. Needles, perhaps chemo that renders someone so ill that they can not stop vomiting or get out of bed. Is that what we call life? <br /><br />Often people at their end of life choose to try such futile treatments because the family wants them to. It is like families who try to force feed a dying person thinking it will keep them strong. The dying person may be very ready to go, but the family can't let go. So they plod on with treatment after treatment, but often without any meaningful quality of life. <br /><br />You said:<br />"In our own society, we have not developed a broad social consensus on caring for the elderly and chronically ill. "<br /><br />I respond: No we haven't. Over the last 100 years, we as a society have often abdicated the idea that families are the best caretakers for the family elders and feel no responsibility to assume any caretaking role. I think it is a byproduct of the post WWII years when technology and scientific and modern was taken as the "best way" automatically. Our society promoted (and continues to promote) mobility and freedom above responsibility in many cases. Nursing homes are often thought of as an entitlement - a benefit that eny elder should take advantage of just like social secueity and medicare. There is no thought about if it is the BEST thing.<br /><br />For sure, many elders need such nursing care. But many don't and would thrive and have a better semblance of a life if they were in a family home surrounded by people they know and love. <br /><br />I realize my view on this may be slanted - I grew up in a home that included not only my grandmother but my great-grandmother too. My elderly mother now lives with me and my wife and while it does require more responsibility and ties us to home a bit more, I wouldn't have it any other way. It was a joy and a blessing to have been raised with the wisdom of my greatgrandmother who was born in 1884. Through her, I have been able to be touched by her parents and grandparents who she knew - and in me, I harbor the teachings of family members borm in the early 1800's. That is amazing to me and a blessing I would never have if my grandmother and great-grandmother were shipped off to a home for strangers to watch over. <br /><br />My mother took care of everyone in the family until their death: her grandmother, mother, my dad, her uncle and aunt. She never complained. And she sure did a lot of taking care of me as a kid, through every strep throat, childhood illnes and broken bones I suffered. The least I can do is give her a clean, safe place to live and make sure she is comfortable and well looked after. <br /><br />Hospice at home comes full circle - back to care at the home by loved ones with the support of the hospice team. A patient-centered circle of care where the patient comfort comes first. Hospice takes a certain level of acceptance, of course, by family as well as patient. It is acknowledging the finite nature of life. But it can also be celebratory - with the realization that the end is near, things that need to be said or done can be done. The procrastination of that return phone call, or a hug, or apology has no more room for the nebulous tomorrows. The realization is that today is the best day to do that because the limited number of tomorrows has been acknowledged.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3242425181922845809.post-23351107909238283002009-12-29T19:00:35.289-05:002009-12-29T19:00:35.289-05:00Hello Judi,
This isn't really a comment on yo...Hello Judi,<br /><br />This isn't really a comment on your recent post. I just stumbled upon an article you wrote in 1998 ("Confessions of a Noncompliant Patient") and it inspired/led me to this site. I've never been in an inpatient psych facility, but my son (26 now) has landed in several, with varying diagnoses. Your assertive voice helps me appreciate his resilience and potential. Thank you so much, and may peace be with you!<br />- Al's MomApplesaucehttps://www.blogger.com/profile/14642722930683662515noreply@blogger.comtag:blogger.com,1999:blog-3242425181922845809.post-11461819465677315262009-12-26T16:59:34.039-05:002009-12-26T16:59:34.039-05:00Thank you for your Dec 24 entry, Judi. I particula...Thank you for your Dec 24 entry, Judi. I particularly valued it as an ex-hospice patient, having temporarily improved to the point where they won't cover me any more, but they did for eight months, which I appreciated very much. I also have lung disease, and expect that at some point I will use hospice again.jo manhttps://www.blogger.com/profile/16035021582622528573noreply@blogger.comtag:blogger.com,1999:blog-3242425181922845809.post-37562353639646998962009-12-26T09:18:10.940-05:002009-12-26T09:18:10.940-05:00A beautifully written piece Judi. If you wonder w...A beautifully written piece Judi. If you wonder why you are lingering on this earth, perhaps one answer may come from the lessons and wisdom you are sharing with others.Nigelhttps://www.blogger.com/profile/11691434426734561749noreply@blogger.comtag:blogger.com,1999:blog-3242425181922845809.post-58381768745381091892009-12-26T01:55:49.563-05:002009-12-26T01:55:49.563-05:00Keep writing,Judi. What you just wrote here is so...Keep writing,Judi. What you just wrote here is so thoughtful and perceptive. I'm proud of the friendship we have had, and grateful to you for it.Ted Chabasinskihttps://www.blogger.com/profile/13630287904951245591noreply@blogger.comtag:blogger.com,1999:blog-3242425181922845809.post-49363061399933272852009-12-25T21:54:56.150-05:002009-12-25T21:54:56.150-05:00Judi,
Thank you again for all of your thoughts, w...Judi,<br /><br />Thank you again for all of your thoughts, wisdom and teaching.<br /><br />Have you ever heard the story of the two waves as they approach the shore? One wave says to the other, in a panic, "Oh no, here comes the shore. This will be the death of us. The other wave responds, "My friend, you misunderstand. We are not waves, we are the ocean."<br /><br />Wishing you peace,Cindy Peterson-Danahttps://www.blogger.com/profile/15720594353408539746noreply@blogger.com